“Life with HO feels a bit like you’re alone under a cloudy sky feeling very little hope but… you always keep your lifeline out as far as you can reaching for any possibilities.”
Erin, mother of Jesse a hypothalamic obesity survivor
“PWS means I’m special and I have to eat healthy. I don’t like being special.”
John, living with PWS
Did you know there are more than 7,000 known rare diseases, but less than 10% have treatments? Learn more about the unmet need in rare disease…
Sarah Rose, an HO survivor
Our Commitment to Patients
Our passion for helping patients is in our DNA. We listen to, learn from and partner with patients, caregivers and patient advocacy organizations in a way that is aligned with our core values.
Welcome to the dedicated Patients & Caregivers section of our Saniona website. If you have any questions, please don’t hesitate to contact me.
PAUL PEREIRA, J.D.
Vice President, Patient Advocacy