Prince, a hypothalamic obesity survivor
Patients & Caregivers
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Hypothalamic obesity

“Life with HO feels a bit like you’re alone under a cloudy sky feeling very little hope but… you always keep your lifeline out as far as you can reaching for any possibilities.”

Erin, mother of Jesse a hypothalamic obesity survivor

Prader-Willi syndrome

“PWS means I’m special and I have to eat healthy. I don’t like being special.”

John, living with PWS


Epilepsy is one of the most common and disabling chronic neurological disorders and currently affects more than 50 million people worldwide. There is a significant medical need as approximately 30 percent of patients are insensitive to treatment by conventional epilepsy medicines.

Rare diseases

Did you know there are more than 7,000 known rare diseases, but less than 10% have treatments? Learn more about the unmet need in rare disease…