{"id":3785,"date":"2021-03-23T19:43:14","date_gmt":"2021-03-23T19:43:14","guid":{"rendered":"http:\/\/saniona.com.linux18.curanetserver.dk\/hypothalamic_obesity\/"},"modified":"2026-01-15T15:06:58","modified_gmt":"2026-01-15T14:06:58","slug":"hypotalamisk-fetma","status":"publish","type":"page","link":"https:\/\/saniona.com\/sv\/patienter\/hypotalamisk-fetma\/","title":{"rendered":"Hypotalamisk Fetma (HO)"},"content":{"rendered":"

[et_pb_section fb_built=”1″ fullwidth=”on” disabled_on=”on|on|on” _builder_version=”4.7.4″ _module_preset=”default” disabled=”on”][\/et_pb_section][et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”4.7.4″ _module_preset=”default” z_index=”1″ height=”56vh” height_tablet=”45vh” height_phone=”70vh” height_last_edited=”on|phone”][et_pb_fullwidth_slider show_arrows=”off” use_bg_overlay=”off” admin_label=”Slider 03″ module_class=”home-slider-section single-pagebanner” _builder_version=”4.7.4″ _module_preset=”default” body_font=”DM Serif Display||||||||” body_text_color=”#ffffff” body_font_size=”46px” body_line_height=”1.3em” min_height=”56vh” min_height_tablet=”45vh” min_height_phone=”70vh” min_height_last_edited=”on|phone” animation_style=”fade” body_font_size_tablet=”40px” body_font_size_phone=”32px” body_font_size_last_edited=”on|phone” body_line_height_tablet=”54px” body_line_height_phone=”46px” body_line_height_last_edited=”on|tablet” custom_css_slide_description=”animation-name: none;”][et_pb_slide heading=”Survivors of Hypothalmic Obesity” use_bg_overlay=”off” use_text_overlay=”off” admin_title=”Slider 01″ _builder_version=”4.7.4″ _module_preset=”default” header_level=”h6″ header_font=”Nunito Sans|600|on||||||” header_text_color=”#3f3939″ header_font_size=”16px” header_line_height=”1.1em” body_font=”DM Serif Display||||||||” body_text_color=”#ffffff” body_font_size=”48.9px” body_line_height=”1.3em” background_enable_color=”off” background_image=”https:\/\/saniona.com\/wp-content\/uploads\/2021\/04\/HO_Banner_Collage_adj.jpg” background_enable_image=”on” parallax=”on” button_alignment=”left” width=”92%” custom_padding=”140px||||false|false” custom_padding_tablet=”140px||||false|false” custom_padding_phone=”40px||||false|false” custom_padding_last_edited=”on|phone” header_text_color_tablet=”” header_text_color_phone=”#555758″ header_text_color_last_edited=”on|phone” body_font_size_tablet=”46px” body_font_size_phone=”30px” body_font_size_last_edited=”on|phone” body_line_height_tablet=”54px” body_line_height_phone=”40px” body_line_height_last_edited=”on|tablet” background_last_edited=”on|phone” parallax_phone=”off” background_position_phone=”center_left” sticky_transition=”on”]<\/p>\n

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PATIENTS & CAREGIVERS<\/a><\/h6>\n

Hypothalamic Obesity (HO)<\/p>\n<\/div>\n

[\/et_pb_slide][\/et_pb_fullwidth_slider][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|tablet” module_class=”flower-section” _builder_version=”4.7.4″ _module_preset=”default” background_color=”rgba(0,0,0,0)” custom_margin=”||||false|false” custom_padding=”14px||16px||false|false” custom_padding_tablet=”” custom_padding_phone=”” box_shadow_style=”preset3″ box_shadow_vertical=”-12px” box_shadow_spread=”-12px”][et_pb_row _builder_version=”4.7.4″ _module_preset=”default” custom_padding=”||5px|||”][et_pb_column type=”4_4″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_image src=”https:\/\/saniona.com\/wp-content\/uploads\/2021\/01\/Saniona_icon_lg_ltblue_new.png” alt=”Saniona Icon blue” title_text=”Saniona_icon_lg_ltblue_new” align_tablet=”” align_phone=”” align_last_edited=”on|phone” disabled_on=”on|off|off” _builder_version=”4.7.4″ _module_preset=”default” z_index=”-1″ width=”66%” width_tablet=”72%” width_phone=”” width_last_edited=”on|tablet” custom_margin=”-350px||-300px||false|false” custom_margin_tablet=”-280px||-300px||false|false” custom_margin_phone=”” custom_margin_last_edited=”on|tablet” animation_style=”fade” animation_direction=”bottom” animation_duration=”1400ms” animation_delay=”200ms” scroll_rotating_enable=”on” scroll_rotating=”60|84|84|100|0\u00b0|30\u00b0|90\u00b0” module_alignment_tablet=”left” module_alignment_phone=”left” module_alignment_last_edited=”on|tablet” scroll_rotating_tablet=”65|84|84|100|0\u00b0|15\u00b0|90\u00b0” scroll_rotating_phone=”” scroll_rotating_last_edited=”on|tablet”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.7.4″ _module_preset=”default” background_color=”rgba(0,0,0,0)” z_index=”60″ custom_padding=”16px||2px||false|false”][et_pb_row column_structure=”3_5,2_5″ _builder_version=”4.7.4″ _module_preset=”default” custom_padding=”||45px|||”][et_pb_column type=”3_5″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_text _builder_version=”4.7.4″ _module_preset=”default” header_text_color=”#1d7ecd” header_font_size=”48px” header_line_height=”1.2em” custom_margin=”||0px|||” header_font_size_tablet=”38px” header_font_size_phone=”36px” header_font_size_last_edited=”on|phone”]<\/p>\n

What is HO?<\/h1>\n

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HO is a rare disorder caused by injury to the hypothalamus, most commonly sustained during surgery or treatment to remove rare, noncancerous tumors of the hypothalamic-pituitary axis. The most common of these tumors is craniopharyngioma (CP). This tumor can occur at any age but is most common in children and older adults.<\/p>\n

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HOW COMMON IS HO?<\/h5>\n

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10-25K<\/h2>\n

HO survivors in the\u00a0U.S.<\/strong><\/p>\n

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16-40K<\/h2>\n

HO survivors in Europe<\/strong><\/p>\n

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LEARN ABOUT HO FROM A DOCTOR<\/h5>\n

[\/et_pb_text][et_pb_blurb title=”\u201cA person does not feel any satiety which will result in immediately asking for the next meal, because there's no feeling of fullness, and that is a very devastating situation.\u201d ” _builder_version=”4.7.4″ _module_preset=”default” header_font=”Nunito Sans||||||||” header_text_color=”#ffffff” header_font_size=”24px” header_line_height=”1.4em” body_text_color=”#96c7f0″ body_font_size=”16px” body_line_height=”1.4em” custom_margin=”16px|||||” header_font_size_tablet=”” header_font_size_phone=”20px” header_font_size_last_edited=”on|phone”]<\/p>\n

Professor Ulla Feldt-Rasmussen, M.D., DMSc.<\/strong>,
Department of Medical Endocrinology and Metabolism, Rigshospitalet Copenhagen University Hospital<\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.7.4″ _module_preset=”default” background_color=”rgba(0,0,0,0)” z_index=”60″ custom_padding=”16px||2px||false|false”][et_pb_row column_structure=”3_5,2_5″ _builder_version=”4.7.4″ _module_preset=”default” custom_padding=”||23px|||”][et_pb_column type=”3_5″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_text _builder_version=”4.7.4″ _module_preset=”default” text_font_size=”20px” text_line_height=”1.4em” header_5_font=”Nunito Sans|800|||||||” header_5_text_color=”#1d7ecd” header_5_font_size=”24px” header_5_letter_spacing=”2px” header_5_line_height=”1.3em” custom_margin=”19px||7px|||”]<\/p>\n

WHAT ARE THE SYMPTOMS OF HO?<\/h5>\n

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HO is characterized by rapid, excessive and intractable weight gain. Patients may have hyperphagia, an uncontrollable hunger, and they may display abnormal food seeking behaviors such as stealing food. HO patients will continue to gain weight despite limited food intake. Additional symptoms may include memory impairment, attention deficits, excessive daytime sleepiness and lethargy, issues with impulse control, depression, and suicide. HO patients are also at increased risk of developing obesity-related comorbid conditions such as type 2 diabetes, non-alcoholic fatty liver disease, hypertension, stroke, and congestive heart failure. Ultimately CP survivors with hypothalamic injury report at least three times higher 20-year mortality than CP survivors without hypothalamic injury.<\/p>\n

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Allie, an HO survivor, before and after surgery to remove her craniopharyngioma<\/i><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,2_3″ _builder_version=”4.7.4″ _module_preset=”default” custom_padding=”||59px|||”][et_pb_column type=”1_3″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_image src=”https:\/\/saniona.com\/wp-content\/uploads\/2021\/03\/Mary.HO_.approvedforexternaluse.02.25.21_web.jpg” title_text=”Mary.HO.approvedforexternaluse.02.25.21_web” _builder_version=”4.7.4″ _module_preset=”default” width_tablet=”50%” width_phone=”70%” width_last_edited=”on|phone” custom_margin=”12px||13px|||” border_radii=”on|20px|20px|20px|20px”][\/et_pb_image][et_pb_text _builder_version=”4.7.4″ _module_preset=”default”]<\/p>\n

Mary, an HO survivor<\/i><\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=”2_3″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_text _builder_version=”4.7.4″ _module_preset=”default” text_font_size=”20px” text_line_height=”1.4em” header_5_font=”Nunito Sans|800|||||||” header_5_text_color=”#1d7ecd” header_5_font_size=”24px” header_5_letter_spacing=”2px” header_5_line_height=”1.3em” custom_margin=”50px||7px|||” custom_margin_tablet=”20px||||false|false” custom_margin_phone=”10px||||false|false” custom_margin_last_edited=”on|phone” header_5_font_size_tablet=”” header_5_font_size_phone=”22px” header_5_font_size_last_edited=”on|phone”]<\/p>\n

HOW IS HO TREATED?<\/h5>\n

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There are no medications approved specifically for HO, and there is no cure for this disease. Many HO patients are treated with approaches used for general obesity such as surgery, medication and counseling, but these are often ineffective.<\/p>\n

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LEARN ABOUT HO FROM A CAREGIVER<\/h5>\n

[\/et_pb_text][et_pb_blurb title=”\u201cWe had to start locking cabinets, locking our fridge, restricting food \u2013 because if he got his hands on it, he wouldn\u2019t stop eating it.\u201d” _builder_version=”4.7.4″ _module_preset=”default” header_font=”Nunito Sans||||||||” header_text_color=”#ffffff” header_font_size=”24px” header_line_height=”1.4em” body_text_color=”#96c7f0″ body_font_size=”16px” body_line_height=”1.4em” module_alignment=”left” custom_margin=”16px|||||” header_font_size_tablet=”” header_font_size_phone=”22px” header_font_size_last_edited=”on|tablet”]<\/p>\n

Chelsea<\/strong>, mom to 10-year-old HO survivor Silas<\/em><\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_video thumbnail_overlay_color=”rgba(0,0,0,0.6)” _builder_version=”4.7.4″ _module_preset=”default”][\/et_pb_video][et_pb_image src=”https:\/\/saniona.com\/wp-content\/uploads\/2021\/04\/Chelsea_VideoStill-scaled.jpg” title_text=”Chelsea_VideoStill” url=”https:\/\/checkrare.com\/if-he-got-his-hands-on-it-he-wouldnt-stop-eating-it-raising-a-kid-with-hypothalamic-obesity\/” url_new_window=”on” use_overlay=”on” overlay_icon_color=”#ffffff” hover_overlay_color=”rgba(29,126,205,0.53)” hover_icon=”%%40%%” _builder_version=”4.7.4″ _module_preset=”default”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ custom_padding_last_edited=”on|phone” _builder_version=”4.7.4″ _module_preset=”default” background_enable_color=”off” background_enable_image=”off” background_size=”contain” background_position=”top_right” custom_padding=”50px||112px||false|false” custom_padding_tablet=”||50px||false|false” custom_padding_phone=”||35px||false|false”][et_pb_row _builder_version=”4.7.4″ _module_preset=”default” custom_padding=”11px||0px|||” border_width_top=”1px” border_color_top=”#1d7ecd”][et_pb_column type=”4_4″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_text _builder_version=”4.7.4″ _module_preset=”default” text_font_size=”20px” text_line_height=”1.4em” header_5_font=”Nunito Sans|700|||||||” header_5_text_color=”#1d7ecd” header_5_font_size=”20px” header_5_letter_spacing=”1px” header_5_line_height=”1.3em” custom_margin=”1px||10px|||”]<\/p>\n

HO RESOURCES<\/h5>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_4,1_4,1_2″ _builder_version=”4.7.4″ _module_preset=”default” custom_padding=”3px|||||” border_color_top=”#1d7ecd”][et_pb_column type=”1_4″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_image src=”https:\/\/saniona.com\/wp-content\/uploads\/2021\/03\/rawf-logo.png” alt=”Raymond A. Wood Foundation” title_text=”rawf-logo” url=”https:\/\/www.rawoodfoundation.org\/” url_new_window=”on” _builder_version=”4.7.4″ _module_preset=”default” width=”100%” custom_margin=”17px|||||”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_4″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_image src=”https:\/\/saniona.com\/wp-content\/uploads\/2021\/03\/PituitaryFoundation_Logo.png” alt=”Pituitary Foundation” title_text=”PituitaryFoundation_Logo” url=”https:\/\/www.pituitary.org.uk\/” url_new_window=”on” _builder_version=”4.7.4″ _module_preset=”default” width=”72%” module_alignment=”center”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.7.4″ _module_preset=”default”][et_pb_image src=”https:\/\/saniona.com\/wp-content\/uploads\/2021\/03\/NCATS_GARD_Logo-1.png” alt=”NIH Genetic and Rare Disease Information Center” title_text=”NCATS_GARD_Logo” url=”https:\/\/rarediseases.info.nih.gov\/diseases\/6463\/hypothalamic-obesity” url_new_window=”on” _builder_version=”4.7.4″ _module_preset=”default” custom_margin=”19px|||||”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

PATIENTS & CAREGIVERS Hypothalamic Obesity (HO) What is HO?HO is a rare disorder caused by injury to the hypothalamus, most commonly sustained during surgery or treatment to remove rare, noncancerous tumors of the hypothalamic-pituitary axis. The most common of these tumors is craniopharyngioma (CP). This tumor can occur at any age but is most common […]<\/p>\n","protected":false},"author":5,"featured_media":1861,"parent":3783,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-3785","page","type-page","status-publish","has-post-thumbnail","hentry"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/pages\/3785","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/comments?post=3785"}],"version-history":[{"count":0,"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/pages\/3785\/revisions"}],"up":[{"embeddable":true,"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/pages\/3783"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/media\/1861"}],"wp:attachment":[{"href":"https:\/\/saniona.com\/sv\/wp-json\/wp\/v2\/media?parent=3785"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}